Friday, January 30, 2009
I feel lucky
I feel so lucky to have PKU in this day and age. I just read an article that said they started testing people in mental institutions in the 1960's when they came up with the test for PKU and over half of all people in institutions had PKU.
Can you imagine???
How lucky are we that we live in a day that my son's PKU was diagnosed 9 days after birth? Of course it isn't the greatest diagnosis-- but still it was diagnosed.
Without the PKU test we would be facing a life with a very mentally disabled child.
It is so manageable by diet that he will grow up to be fine.
I have my bad days for sure--- but mostly I am so thankful that we know what we are up against and all it takes is a dietary change.
Thanks be to God for the newborn screening!!!
I have stumbled upon this blog from another that I read.
My heart is breaking for this family. Here I am worried about what my child will eat and this family is dealing with childhood cancer and most likely the death of their daughter.. My thoughts and prayers are with them. Please say a prayer for them and their sweet daughter
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